Posted by: taniamum | September 23, 2008

Loss

It’s been a while since I’ve posted here.  I haven’t really been in the frame of mind as so much has been going on.  I didn’t really feel it appropriate to write it all in here but now I think, why not?

This year has been a difficult one.  In April we suffered our seventh miscarriage.  I was seven weeks pregnant when I began spotting.  An appointment for a scan was made for me at the Early Pregnancy Unit at the hospital a few days later, where we saw a beating heart on a baby little over a week younger than my dates.  The sonographer said that the pregnancy was viable and that I should go to the next department and book my 12 week scan.  I went home but over the next few days the bleeding increased, and on the Saturday, exactly a week after it began I passed by baby complete in the bag of waters like a coin dropping into the toilet bowl.  I fished it out, cleaned myself up and called Mike in.  I unwrapped the tissue I’d placed around it and showed him it.  So tiny.  That night we buried it under the plum tree.  The sadness and grief overwhelmed me.  I couldn’t believe that we had lost our seventh.  Seven live children and seven losses.  But all people seem to see when they look at us is the seven live children, not knowing how much we’ve been through to have them. 

In August, I found out I was pregnant again.  A week and a half later I lost it again.  I called my doctor who asked if I’d ever been referred for investigation.  I had, back in 2000, after the fifth miscarriage.  We were refused as we already had children.  We had three at the time.  Even after my third miscarriage (two live children at the time), I walked out of the room in which I had minutes ago had my scan to be told that my baby had gone, when the nurse told me “You already have two children.  What on earth do you want any more for?!”. 

I told the doctor that I didn’t expect anyone would help us now, as they didn’t help us years ago when we had fewer children.  He said that it didn’t matter how many children we had, we still had a right to know what is going wrong, as something surely is.  He gave me the forms to check for antiphospholipid syndrome (where clots form and stop the embryo from growing, resulting in miscarriage), and referred me to the gynaecologist. 

The results from the blood test came back normal.  To be honest it disappointed me a little, as at least it would have been a reason, something to explain our losses, and something which may have been helped with aspirin and heparin injections.  I felt we were back to square one, of not knowing.

Our appointment with the gynaecologist was on Friday just gone.  A few days before I had a positive pregnancy test.  I spent the time in the run up to the appointment feeling negative.  I knew of the reception we’d get even before we saw anyone.  For some reason, you aren’t supposed to want more than a reasonable number of children.  Reasonable in whose eyes I’m not sure but there is little comfort or sympathy if you experience losses as you are expected not to feel hurt or pain as “you already have “x” amount of children already so be grateful.”  Of course we’re grateful, but despite having seven children we have still been through eight miscarriages.  Eight times you hope for something and feel crushed.  Eight faces we won’t see and eight hands we won’t hold.  But somehow we’re not supposed to feel the pain of any more losses.  And heaven forbid should we actually admit that we want more children!

We walked into the consulting room for the appointment and Mrs Kahn didn’t seem very impressed that we had the three youngest with us.  She asked for the history so gave her the run down of living children DOB’s and miscarriages. I told her I had a positive test on Tuesday and gave her a urine sample but she didn’t seem to believe me and started writing out blood test forms for Mike and I to have chromosomal tests done.  She said that if I was pregnant I couldn’t have these tests done as they wouldn’t be accurate, and I told her that I was pregnant.  She carried on writing the tests and we went back over that conversation (“if you are pregnant…”, “yes, I am…”) but still she continued writing.  The nurse then walked in and she looked up and exclaimed “It IS positive!”.  “Yes, I know” I told her.  So she then put all the forms (three or four of them) that she’d written out to the side and said there wasn’t anything they could do.  I asked if they would monitor me at all and she said no.  I asked if there were any tests they could do during the early pregnancy to see what was going on and she said no.  I asked if I could have a hcg and progesterone test carried out and she said no.  I said I was sure there were some tests they could do to find out what if anything was causing the miscarriages and then Paddy (14 months old) started crying.  She huffed in his direction several times, and rolled her eyes at him, then asked us to go outside and she’d call us back in after she’d spoken with the consultant.  Five minutes later she beckoned me in and said “I only want you in here.  They can wait.” and I said I wanted my husband with me.  She huffed and rolled her eyes again.  We went in and she said the consultant said I could have the hcg and progesterone tests done but even if they showed anything wrong they wouldn’t help me.  I asked what would happen now and she said if I miscarried again I would have to try to re-arrange another appointment like todays via a referral for six weeks afterwards, then have the chromosomal blood tests done which she doesn’t think would show anything anyway, and if they do show anything they will make a decision ”about” four months later as to whether they will help us.  No other tests are possible, and if they are possible we can’t have them. 
 
So the long and short of it is: No monitoring, no investigation, no nothing. Waste of time and hope.  Two referrals, one with five miscarriages and three live children, and eight miscarriages and seven live children, and both refused.  Why aren’t we worthy of help?  Why does this keep happening?

This morning I woke up, went to the toilet and have begun spotting again.  It seems likely that this will be our ninth loss.  My faith is being truly shaken, we have nobody to turn to and nobody to help us.  I’m supposed to be strong, be grateful, and carry on as normal pretending everything is ok.  After all, I’ve already got seven children, right?  But having them isn’t making me numb to feeling the pain of losing another.  I wasn’t born with a limited amount of love to give.  I’ve got plenty of it left.  We shouldn’t be denied help that another person would receive in the same circumstances, but for the fact that they only had one or two children.  Finding support is hard and this is why I’ve resisted posting about it here, as I expect to receive some very negative comments. 

I don’t know why this is happening.  I feel like I’m being punished for something I’ve done.  My head feels so empty yet so full of questions.   There’s nothing left we can do that I can see. 

I can’t believe that the bleeding has begun again.  I can’t believe that I am dealing with this a ninth time.  I can’t believe nobody wants to help us find out why.  If you could please spare a prayer for a good outcome, and if not that then the strength to deal with whatever we face.


Responses

  1. If anyone posts negative comments here, then they must be made of stone. Even I feel for you, Tania, and you know I’m not a big fan of mega-size families!!!

    Your consultant obviously made her mind up about you before you even walked in. And she decided to let you see her disapproval in action, rather than words.

    As you say, most people (including me) would look at the size of your family and say “surely you have enough?” But, as you also say, that doesn’t factor in all the babies you have lost.

    I feel for you.

  2. It doesn’t matter how many children you have had successfully, something is going wrong far far too often and it should be looked into just the same for you as for anyone else. The doctor was cold and heartless and is a disgrace to her speciality.
    I truly hope that you can get through this, with or without their ‘help’, never mind their attitudes. Maybe you can go back to your doctor, who at least cares and wants some answers, and ask if he can send you somewhere else more sympathetic?
    Love and prayers,
    Jax

  3. HUGS!! I wish I could hug you in person right now although I am not sure I would be much support as I would be crying too! I do not fully understand your loss as I have never had a miscarriage but, I do know what it is like to not get pg month after month and year after year….and yet having 5 children at home and people do not understand why I could possibly want more…somedays even my husband does not understand.
    There is obviously a medical reason behind this and I do hope you seek out another opinion. Perhaps a midwife or someone who regularly deals with large families.
    HUGS and PRAYERS!!!
    Pam

  4. I feel for you! Our medical system has plenty of people like that too–but others who have compassion and empathy–my Dr cried when he told us of our last loss (and we had a vanful of living children)

    I’ve never done this before but I have a friend who takes a baby aspirin a day (the little dose ones) while pregnant–she said they don’t know why it works but it does a lot of the time-it did for her after 4 losses in a row.

    Having lost my uterous at my last delivery; yours is a pain I will never have again….that loss of possibility hurts too. We who love much must risk much pain in order to have that love.

    I am praying for much joy in your future and quiet, loving arms around you now. And lots of laughter from those blessings you CAN hold–THAT is medicine indeed.

  5. All of our love and prayers are with you…praying for a miracle for you.

    Every single day I look at my babies here and my heart breaks for what should have been – no matter how many you have, you still have that gap.

    Not sure it will help right now, but write a complaint to your PALS at the hospital and demand a referral to a new doc – a consultant or possibly a genetic specialist. Noone has the right to decide whether you are worth helping. You ARE, everyone is, and they need to do something about that.

    I hope against hope that things go your way…

    Lou x

  6. Tania your love for your family is awesome in the traditional sense of the word. I am so sorry you have to walk so much pain.

    Much love and hugs from me.

  7. DearTania,
    You have so eloquently expressed what so many people feel with your words regarding all your losses.You are absolutly right, we should not be told to go away and be grateful, but should be acknowledged and heard.Like you, I have suffered losses between all my children, 4 miscarriages, 1 ectopic pregnancy and a beautiful baby who died at just 4 days old.He wa smy 8th, I tried so hard to get pg after him and no one would help dispite our tangible grief at his loss.
    I was fortunate to have the most compassionate of gynacologists who saw me against my dr’s wishes free of charge and advised and supported us.Knowing someone was on our side helped so much.When I did get pg eventually my dr told me how much he idsapproved.
    It is so incredibly lonley.People do not understand and it isnt fair.
    Please know there are many of us here, to listen and to support you too.
    Love,
    Fiona


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